Patient Advocacy

This event gave invaluable learning experiences for both patient advocates and healthcare professionals, focusing on taboo subjects, diversity in patient-based research, and shared decision-making. 

Patient Advocacy Day at EAU26

The Patient Office developed a series of diverse, cutting-edge roundtable sessions for Patient Advocacy Day at EAU26.

Patient Advocacy Day followed the below structure:

  • Patient Poster session with Top 3 Awards, chaired by Jacqueline Daly and Robert Greene
  • Roundtable #1: BALANCE: Embracing diversity in prostate cancer - Our journey so far, chaired by Denzil James
  • Roundtable #2: BCLEAR: Shared Decisions, Stronger Care in Bladder Cancer – Addressing Clinician Needs Across Europe, chaired by Michael van Balken
  • Roundtable #3: Shared Decision-Making in Kidney Cancer - Insights from Global Patient Data and Clinical Practice, chaired by Claudia Ungarelli
  • Roundtable #4: Sleep Deprivation in Urology Patients, chaired by Anna De Santis
  • Roundtable #5: Penile Cancer - The Impact on Mental Health and Intimacy, chaired by Robert Cornes

Patient Advocacy Day roundtables - the details

To view the programme in full, click here.

Patient Advocacy abstracts

The six selected Patient Advocacy Abstract submissions were:
 

  • Abstract ID: AP26-0014
    Title: Education materials on bladder cancer: A scoping review and recommendations for future initiatives
    Submitter: Drs. R.C.A. Leenen

     

  • Abstract ID: AP26-0016
    Title: What prostate cancer patients find important when making treatment decisions
    Submitter: Drs. P. Nasseri

     
  • Abstract ID: AP26-0011
    Title: Bladder health and lived experience in multiple sclerosis outcome measurement
    Submitter: Dr. L. Makaroff

     

  • Abstract ID: AP26-0017
    Title: Supporting men on androgen deprivation therapy (ADT) for prostate cancer: a patient centred innovation
    Submitter: Mrs. L. Fleure

     

  • Abstract ID: AP26-0015
    Title: Key determinants influencing treatment decision-making for and adherence to active surveillance for prostate cancer: A qualitative study
    Submitter: Drs. P. Nasseri

     

  • Abstract ID: AP26-0019
    Title: Impact of behavioural factors on care seeking for urinary symptoms linked to bladder cancer
    Submitter: Mr. A. Filicevas

     

The winners were Dr. P. Nasseri (First), Drs. R.C.A. Leenen (Second), and Mr. A. Filicevas (Third).

Get in touch

Contact information
EAU Patient Office
PO Box 30016, 6803 AA Arnhem
The Netherlands
T +31 (0)26 389 0680

Website: patients.uroweb.org
Facebook: @EAUPatientInformation
BlueSky: ‪@eaupatient.bsky.social

If you have any questions specific to the Patient Advocacy Sessions, please contact us via email at info.patientinformation@uroweb.org

Want to learn more? Visit: patients.uroweb.org/patient-advocacy