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Prof. Wout Feitz (NL) talked about the aim of eUROGEN, the main focus of the coming months and his role in the European protection programme.

eUROGEN is one of the 24 European Reference Networks (ERN) that are approved and funded by the European Union (EU). ERNs are a new form of cooperation at European level between healthcare providers with specialised expertise with the aim of improving care for patients with rare diseases or complex conditions.